SickKids
#WakeUpDylan 2nd Annual Lemonade Stand Fundraiser
$5,291.00
$5,000.00

My Message

Dylan Kyle aka Kirby D aka Canada's Youngest Narcoleptic

My son Dylan is 5 years old. He's insanely cute, scary smart, hilarious, incredibly charming,  a lover of all things Star Wars and severely narcoleptic with a side of cataplexy. To keep things interesting, he is also allergic to peanuts and tree nuts. Sadly, the true pleasure that is a Reese Peanut Buttercup and a restful night's sleep, will forever allude him.

The Lemonade Stand

On Sunday, May 28th, 2017 between 2pm and 4pm at 641 Thornhill Woods Drive Park in Thornhill, Ontario (just north of Toronto)my friends and I will be hosting a lemonade stand fundraiser to raise much-needed awareness for narcolepsy and cataplexy. We'll be selling lemonade (obviously), including last year's fan favourite charcoal lemonade, lots of sweet treats including cupcakes, cookies and candy kabobs, handmade bracelets and we also have a promotional draw with lots of amazing prizes. Last year's lemonade stand fundraiser raised just shy of $3,000 and this year we're hoping to raise $5,000.

Why Raising Awareness is so Important

Sleep is one of the most misunderstood and often-overlooked pillars of health, and this is particularly true when it comes to narcolepsy and cataplexy. According to a 2010 article in the Journal of Clinical Psychiatry, failure rates for properly diagnosing narcolepsy are extremely high among a variety of physicians. Neurologists misdiagnose narcoleptics 45% of the time, general practitioners 78.1% of the time and paediatricians almost 100% of the time. It takes an average of 20 years to properly diagnose narcolepsy. TWENTY YEARS! This is not okay.

Sleep is a basic biological requirement. We literally cannot survive without it, much like we cannot survive without food or water, yet too often we treat it as a luxury or those who “over-indulge” as lazy.  By raising awareness, we are waking up the world to the importance and power of sleep!

Why I'm Begging you to Help

Dylan isn't Dylan anymore. He's Dylan with Narcolepsy ("DWN") now. Dylan was sweet, happy, good natured, friendly and always smiling. DWN is often grumpy, irrational, impatient and exhausted. Dylan was very social and loved to play with his friends but DWN is simply too tired to play. Naps are his new playdate. Dylan had a heart of gold that he wore on his sleeve. DWN has a heart of gold, secretly tucked in beneath layers of exhaustion and sleep deprivation. I love DWN, but I want Dylan back. 

Hope to see you there!

Please join us at the #WakeUpDylan 2nd Annual Lemonade Stand. If you are not able to attend, please consider making a donation here.

Thank you so much.

Sincerely,

Dylan's Mama Bear

Event Date
Nov 12, 2015 12:00 AM
Location Name
First Location

Event Details

Event Date:
May 28, 2017
Event Time:
2pm to 4pm
Street:
641 Thornhill Woods Drive Park
City:
Thornhill
Standard

My Team

%TeamName% is affiliated with %CorporateTeamName%

Leave a Message

Pebbles Posen left a message
Jan 12, 2018 5:39 PM
Thank you for taking such amazing care of me and for all your TLC!!!
Friend of SickKids donated $100.00
Jan 12, 2018 5:38 PM
Buttercup and Pebbles left a message
Sep 14, 2017 8:52 AM
We love you D!!!!!!
Buttercup and Pebbles donated $118.00
Sep 14, 2017 8:52 AM
Naomi Fogel donated $72.00
Jul 11, 2017 3:03 PM
Sylvia and Carys left a message
May 30, 2017 5:51 PM
We love you dylan
Sylvia and Carys donated $700.00
May 30, 2017 5:50 PM
Jessica left a message
May 29, 2017 2:41 PM
Amazing job!!
Jessica Jacobson donated $50.00
May 29, 2017 2:40 PM
#WakeUpDylan Lemonade Stand donated $3,441.00
May 29, 2017 2:04 PM
Orlie Soroka left a message
May 29, 2017 1:23 PM
Sorry I couldn't be there. :(
Orlie Soroka donated $25.00
May 29, 2017 1:22 PM
Friend of SickKids donated $100.00
May 29, 2017 12:43 PM
cynthia left a message
May 29, 2017 8:52 AM
I'm sorry I couldn't be at the event. As always, you are a rock star. I'm sure it was a huge success.
cynthia donated $100.00
May 29, 2017 8:51 AM
Jodi, Jamie, Nate and Ash left a message
May 28, 2017 5:58 PM
We Love you D xoxo
The Newmans donated $100.00
May 28, 2017 5:58 PM
Nancy Davis left a message
May 28, 2017 4:31 PM
Missed the Lemonade Stand today. Hope it went well!
Friend of SickKids donated $25.00
May 28, 2017 4:31 PM
Yael Greenwood (R's sis-in-law :) left a message
May 28, 2017 3:58 PM
Would not make it today - hope it went well!
Friend of SickKids donated $10.00
May 28, 2017 3:58 PM
Dhurata Banaj donated $50.00
May 28, 2017 2:26 PM
Cathy Price left a message
May 28, 2017 1:44 PM
Hope it's a great day for a great cause and a great son!
Cathy Price donated $50.00
May 28, 2017 1:42 PM
Mark left a message
May 27, 2017 4:32 PM
Good luck!
Mark Vella donated $150.00
May 27, 2017 4:31 PM
Friend of SickKids donated an undisclosed amount
May 27, 2017 11:40 AM
Shannon Prevost left a message
May 23, 2017 2:27 PM
Great job "momma bear" Lanna, on spreading the word about narcolepsy and cataplexy!
Shannon Prevost donated $100.00
May 23, 2017 2:24 PM
Mama Bear donated $50.00
May 20, 2017 11:08 PM