Sevanah's Sunshine

In Memory of Our Baby Boo,

Sevanah was a joyful, active child who loved to sing and dance, create artistic masterpieces, and explore the outdoors. Her incredible imagination provided many hours of adventures for her beloved 'Monkey Crew' with each monkey having a name and an extensive background story. She spent many hours writing and illustraing her famous monkey adventure stories. Sevanah's sense of humor was only outshone by her kind heart which she shared with us until her last breath.

Sevanah's life was taken far too soon by Diffuse Intrinsic Pontine Glioma (DIPG). With a 0% survival rate this inoperable, fast-growing brainstem tumor takes a healthy, active child and begins to shut down vital physical functions. A child loses function of their limbs, has difficulty seeing and hearing, swallowing becomes impossible, and eventually either their lungs stop breathing or their heart stops beating and they die. All the while their cognitive abilities remain in tact so these children are completely aware of what is happening to them as they endure a torturous death. Most succumb to DIPG within 9 months of diagnosis and 90% die within 2 years. Unfortunately, no new advances in treatment have been made in over 50 years!

After being diagnosed with DIPG Sevanah declared, “When I get better we can help other kids with DIPG!”  Sevanah’s thoughtful, kind nature and her desire to help other children is the driving force behind her family’s crusade against DIPG and a search for a cure. A special girl with a heart of gold, forever missed.

Please help Sevanah's dream of helping other children with DIPG become a reality by donating to DIPG research by Dr. Cynthia Hawkins at SickKids.

Thank you for your support!

Event Date
Nov 18, 2015 12:00 AM
Location Name
First Location
This page is in memory of:
All donations will be in support of:
Diffuse Intrinsic Pontine Glioma (DIPG) Research

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2 Percent Realty Okanagan donated $2,147.00
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